We are pleased to announce that the ImproveCareNow (ICN) Data Operations Committee has prepared and released the ImproveCareNow 2023 Data Report. This report aims to present a brief summary of patient data captured in the ICN Outcomes Registry - a pediatric IBD-specific, enhanced health registry built by and for the ICN Network. 

This data report represents the breadth of knowledge we have all gathered together and, in doing so, makes new learnings possible. We invite you to review the available data and think deeply about it. What has not yet been studied that may further our goals of improving remission and quality of care in pediatric IBD? With new stratifications in the Population Management reports, available at your fingertips, discover new opportunities for focus and attention in research.

– Charles Samson, MD & Melanie Miner, Co- Leaders, ICN Data Operations Committee

 

Following a brief hiatus as the network transitioned to using the new Outcomes Registry, ICN community members can expect to receive an updated Data Report from ImproveCareNow, with data and insights from the previous complete calendar year, annually going forward. The Data Operations Committee is open to receiving feedback on this report so it may be improved in subsequent years. If you have comments after reading this report, please contact us. 

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Related Links 

2020 ImproveCareNow Annual Data Report Released 

2019 ImproveCareNow Annual Data Report Released 

About ImproveCareNow

ImproveCareNow is a Learning Health Network dedicated to transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (Inflammatory Bowel Disease or IBD) by building a sustainable collaborative chronic care network. We are enabling patients, families, clinicians and researchers to work together in a learning health care system to accelerate innovation, discovery and the application of new knowledge. We invite everyone interested in getting kids with IBD better right now tojoin us and support our work.
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