ImproveCareNow 2024 Data Report Released

Posted by ImproveCareNow™ on September 03, 2025

We are pleased to announce that the ImproveCareNow (ICN) Data Operations Committee has prepared and released the ImproveCareNow 2024 Data Report. This report aims to present a brief summary of patient data captured in the ICN Outcomes Registry - a pediatric IBD-specific, enhanced health registry built by and for the ICN Network.

Together, these data [in this report] showcase the vast knowledge we have all gathered. By sharing it, we hope to inspire new innovations and accelerate research into pediatric IBD. As you review this report, we encourage you to ask: What hasn't been studied yet that could help us improve remission and quality of care for children with IBD?

- Charles Samson, MD & Melanie Miner, Co- Leaders, ICN Data Operations Committee

ICN community members can expect to receive an updated Data Report from ImproveCareNow, with data and insights from the previous complete calendar year, annually going forward. The Data Operations Committee is open to receiving feedback on this report so it may be improved in subsequent years. If you have comments after reading this report, please contact us.

2020 ImproveCareNow Annual Data Report Released

2019 ImproveCareNow Annual Data Report Released

About ImproveCareNow

ImproveCareNow is a Learning Health Network dedicated to transforming care, health and costs for all children and youth with Crohn’s disease and ulcerative colitis (Inflammatory Bowel Disease or IBD) by building a sustainable collaborative chronic care network. We are enabling patients, families, clinicians and researchers to work together in a learning health care system to accelerate innovation, discovery and the application of new knowledge. We invite everyone interested in getting kids with IBD better right now to join us and support our work.