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Episode 2 of the imPACt Podcast

Hi, I’m Maha, one of the PAC members you’ll hear talking about IBD in the second episode of our imPACt podcast! 

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Spring 2021 Live Online Community Conference - Stronger Together: Reflection, Resilience, and Recovery

On Thursday, March 25 and Friday, March 26, ImproveCareNow will host their third LIVE Online Community Conference (LOCC). Sessions begin on March 25 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:00 PM ET when a causal Engagement and Social Hour begins. Sessions resume again on March 26 at 10:00 AM ET and continue through the first half of the day, with a wrap up scheduled at 1:20 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including advocacy for patients, families, and the community; managing mental health and IBD during the COVID-19 pandemic; recovering from flares; and food insecurity.

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PAC Moment: What the PAC Means to Me

IBD can feel lonely and isolating. It can really help to connect with and talk to other people who understand because they live with IBD too. Fionna shares what being part of the Patient Advisory Council (PAC) means to her and how it has influenced her IBD journey:

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For so long I hid my IBD

Makenna Martin is my name and I am looking forward to attending technical school in the fall of 2021. I love researching just about anything and everything when I have the time. Lately I have spent a lot of time researching the difference between TPN (Total Parenteral Nutrition) and Enteral feedings. They both give you what you need, just one goes through a vein and the other straight to the stomach. 

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Episode 1 of the imPACt Podcast

Hey, it’s Robbie! I’m a member of the Patient Advisory Council (PAC) and your host for Episode 1 of the imPACt podcast today. The PAC and I are beyond excited to share our first full episode of the imPACt podcast with you! Sharing the perspectives of patients and caregivers is our goal, and imPACt truly brings a new, modern twist on allowing others to listen to perspectives of those within the ICN community.

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Ulcerative Colitis and My “New Normal”

My name is Hannah, and I am a sophomore in high school. In August of 2020, I was diagnosed with ulcerative colitis. Within a couple weeks of that diagnosis, I had my colon removed. After that I had an ostomy for about four months before having my j-pouch surgery in December. One interesting thing that most people don't know about me is that I have moderate hearing loss in my right ear.

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Patient Advisory Council launches new "imPACt" podcast to connect and talk IBD

Here #InTheLOOP we have been honored to share hundreds of stories from people across our community. We believe strongly in the power of #TalkingAboutIBD and of stories to highlight the real voices, experiences, joys, frustrations, triumphs and struggles of patients who live with IBD every single day. Today, we are very excited to be able to share a whole new way for you to engage with the patient voice - to really hear their stories - by tuning into a brand new podcast by the Patient Advisory Council (PAC) called imPACt! In this podcast PAC members will be talking openly about IBD with a goal of raising awareness and inclusivity, and connecting with listeners, each other and podcast guests.

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