Stay in the LOOP!

Stay in the LOOP with the ImproveCareNow blog! Sign up here and we'll email you the latest posts from our community.

By clicking submit, you're certifying that you're 13 years and older and agreeing to ImproveCareNow's terms & conditions.


World IBD Day - Special Episode of the imPACt podcast - Advocacy & Talking About IBD

World IBD Day is May 19. It happens every year and is a time for #TalkingAboutIBD. It's important to share our lived experiences with Crohn's disease or ulcerative colitis (also known as Inflammatory Bowel Disease or IBD), to raise awareness of these often invisible illnesses and to build momentum and advocacy for positive changes to IBD care and outcomes. Join us for a special episode of the imPACt podcast this #worldIBDday 💚💙

Read more

In reality, vulnerability is a sign of strength.

 

Hey! My name is Caitlyn, I'm an 18 year old freshman in college. I was only just recently diagnosed with Crohn's disease in December of 2020, but I have struggled with symptoms for a while. An interesting fact about me is that I grew up in a military family and have lived all over the country.

Read more

There is no better outlet for understanding your diseases than through other patients

My name is Nicole and I am 21 years old. I was diagnosed with Crohn's disease on my 16th birthday and Primary Sclerosing Cholangitis (PSC) just a few months later. These diagnoses were heartbreaking, but I did not let them stop me. I am graduating magna cum laude with a Bachelor's of Science in Biology and will be returning to my hometown of Cincinnati, Ohio to work as a Genetic Counseling Assistant to pursue my passion in genetics.

Read more

IGNITE - Taking the journey together.

Heidi's #IgniteTalk is a powerful reminder that while IBD may be part of your life, you don't have to do it alone. There is value in connecting with others to give and receive support, in #TalkingAboutIBD because every story matters and has the power to change someone else's story, in offering what you have learned on your journey in the hope that it can help another person outsmart IBD.

Be inspired by Heidi's #IgniteTalk 🔥 

Read more

IGNITE - Learning to give myself grace.

Fionna is an active member of the Patient Advisory Council, and is currently co-leading their communications taskforce. In this role, she is collaborating with other PAC members and ImproveCareNow to bring the stories and voices of the PAC to even more people in new and exciting ways. This spring she helped to launch the imPACt podcast, which is a new way to connect with and listen to young people talking about life with IBD. It is through the PAC that Fionna was recently able to tap into support, understanding and validation as she coped with a UC flare. She credits the PAC and this experience with helping her shift her mindset about healthy resilience, exploring the benefits of opening up and being vulnerable, and learning how to be flexible and give herself grace during tough times.

Be inspired by Fionna's #IgniteTalk 🔥

Read more

Episode 5 of the imPACt podcast - Managing School with IBD

I'm Vanessa - one of the PAC communications team leads - I am currently a HS junior and on tennis team. I've had to learn how to talk to my teachers, coach, teammates and friends about Crohn's and tell them when I feel sick or have an infusion. Being open has helped me build trusting relationships with them. Managing IBD, school and sports is definitely a challenge, but having a strong support system and being able to communicate with them openly has made it a lot easier to succeed. I'll be talking more about it on the podcast today - join me!

Read more

Taking Care to the Next Level - How Patients are Making a Difference

Mahalakshmi (Maha) Parakala is an active member of the Patient Advisory Council and currently serves a co-leader of their recruitment taskforce. She is a LOOP contributor, has presented during ICN Community Conferences, has co-developed IBD resources, and recently co-hosted an episode of the new imPACt podcast. At our Spring Live Online Community Conference, Maha shared her story about discovering patient advocacy and the role it has played in her life during our Engagement Plenary Better Together: Growing our CIRCLE Community to Take Care to the Next Level.

Please enjoy Maha's presentation, which we have shared both as a video and in transcript form, below:

Read more


Know your iron status: Iron deficiency and IBD

Anemia is common in IBD and iron deficiency is the leading cause. Studies show up to 95% of individuals newly diagnosed with IBD are iron deficient. Learn more about iron deficiency and IBD from the ICN Registered Dietitian group, including common symptoms, as well as what to expect with testing, treatment, management and prevention.

Read more

Built by Veracity Media on NationBuilder