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My new irritable friend

In November of 2021, I was diagnosed with IBS or irritable bowel syndrome. I had an uninvited, new irritable friend that became a part of my daily life, just like my IBD. Leading up to being diagnosed, I had been experiencing gut-wrenching belly pain, nausea with pain, and fluctuations between painful constipation and uncontrollable and very urgent soft stools. I knew something wasn’t right. I had experienced fluctuations of stool type from my IBD, but this time it was different. 

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Spring 2023 Live Online Community Conference - Foundation For Success

ImproveCareNow Spring 2023 Live Online Community Conference. April 27 & April 28. Foundation for Success.

On Thursday, April 27 and Friday, April 28, ICN is hosting a Live Online Community Conference (LOCC). Sessions begin on April 27 at 10 AM ET (9 AM CT, 8 AM MT, 7 AM PT) and continue through 4:50 PM ET. Sessions resume again on April 28 at 10 AM ET and continue through the early part of the day, with a wrap up scheduled at 2:30 PM ET. 

All are welcome to join us for this interactive, online event and we are proud to be able to offer FREE registration to patients and parents/caregivers. When you register for the LOCC you have the option to attend sessions live or enjoy them later when it is convenient for you. All registrants will receive 60-day access to session recordings which will cover topics such as: diet & IBD, new therapeutics, whole person care, data driven improvements in care & outcomes, IUS, healthcare equity, pediatric IBD research, transition clinics, improving injection experience, A-LiNK, patient empowerment, new Ignite Talks

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Welcoming new ICN care team members

Infographic with Clinical Director Shehzad Saeed. "What Excited you about ImproveCareNow? The ability to work with everyone to deliver superior outcomes, partnerships, research and discovery and learn from each other."

Once or twice a year, ImproveCareNow hosts an online training event called Immersion to welcome new care center staff to our community. Participants leave Immersion with a greater understanding of how ICN makes a difference; how their efforts at their care center matter; and how they can develop relationships and find support within our ICN Community.

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The dreaded medications

Quote from ImproveCareNow Patient Advisory Council member Autumn, "As long as I can remember, I have been required to take numerous different medicines and to 'trial and error' different ones to find what works best for me."

I have been surrounded by medications and taking pills my whole life. Between being diagnosed with Crohn’s disease at six years old and being diagnosed with IBS recently, with all the different medications I have to take every day and have had to try - feeling overwhelmed is an understatement!

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Living with IBD and a feeding tube doesn't define you!

Quote about Feeding Tube Awareness. "Your feeding tube doesn't define who you are, it doesn't make you any less beautiful. You are still the same person you were before the feeding tube."

February 6-10, 2023 is Feeding Tube Awareness Week! I think it’s very clever to have something like this because it seems like most people are ashamed or feel insecure when having a feeding tube; it shouldn’t be like that. A feeding tube isn’t an embarrassing thing to have. We should be grateful to have such a thing when we need it, so we don’t get even more sick.

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