LOOP Blog

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.

It’s back to school time! For me (Fionna), accommodations and communicating with my professors have been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.

I’m Shira, one of the Advocacy Co-Leads for the PAC. Listen in as fellow PAC member, Caitlyn, and I talk with Pediatric Gastroenterologist Dr. Rachel Bensen and Pediatric Rheumatology Fellow Dr. Sara Patrizi about IBD Associated Arthritis.

Getting enough vitamin D is especially important for growing kids, because it is involved in bone growth, bone density and bone strength, and in growth itself. Vitamin D also appears to have other health benefits.

In this post, I decided to write about another staple of my diet: rice. As someone from southern India, my diet has always included rice, but it has become especially important as I have tried diets that limit gluten.

Episode 11 of the imPACt podcast brings together young adult PAC members and Dr. Michele Maddux, a clinical psychologist at Children’s Mercy Hospital, for a candid discussion about the many aspects of transitioning from pediatric to adult IBD care.

Listen in as I (Vanessa) join PAC members Elise, Leela and Madeline for a chat about heading back to school with IBD.

I'm Rachel, but go by Rach. I'm a 17-year-old rising senior in high school, and about to start a job at Panera Bread. I was diagnosed with Crohn’s in 2016 at age 13. Most people don't know that I love unicorns!! ♥

Today, I am writing about another food that I think has been vital along my IBD journey: energy bars. Whether you believe these bars truly give you instant energy or not, they have been extremely helpful (and tasty) to me at many different points in time.

Sun safety is important for everyone, but if you are living with IBD (and taking certain medications) it may be even more important for you to protect your skin from the sun.