LOOP Blog

This week's imPACt podcast episode is all about the upcoming Fall 2021 ImproveCareNow Live Online Community Conference!

On Thursday, September 30 and Friday, October 1, ImproveCareNow will host their fourth Live Online Community Conference (LOCC). Sessions begin on September 30 at 9:30 AM ET (8:30 AM CT, 7:30 AM MT, 6:30 AM PT) and continue through 5:30 PM ET when a casual Post Conference Exhibitor Time begins. Sessions resume again on October 1 at 10:00 AM ET and continue through the early part of the day, with a wrap up scheduled at 3:40 PM ET. 

All are welcome to join us for this interactive, online event where we plan to all teach and all learn about topics including: IBD, identity and intersectionality; building community and co-producing during physical distancing; fatigue and sleep difficulties; body image & disordered eating; and cultivating safe and successful patient-provider relationships.

Check out this episode of imPACt, where PAC and Parent Working Group members chat about how they've experienced the evolution of the patient-parent relationships and what this looks like in the context of IBD care.

In preparation for presenting a breakout session about Fatigue, Sleep, and IBD at the upcoming Live Online Community Conference (LOCC), Nour and I (Maha) have shared our own personal experiences with and perspectives on IBD-related fatigue.

It’s back to school time! For Fionna accommodations and communicating with her professors has been super helpful! Let’s see what PAC members have to say about managing IBD at college, and how it impacts their routines.

I’m Shira, one of the Advocacy Co-Leads for the PAC. Listen in as fellow PAC member, Caitlyn, and I talk with Pediatric Gastroenterologist Dr. Rachel Bensen and Pediatric Rheumatology Fellow Dr. Sara Patrizi about IBD Associated Arthritis.

Getting enough vitamin D is especially important for growing kids, because it is involved in bone growth, bone density and bone strength, and in growth itself. Vitamin D also appears to have other health benefits.

In this post, I decided to write about another staple of my diet: rice. As someone from southern India, my diet has always included rice, but it has become especially important as I have tried diets that limit gluten.

Listen in as I (Vanessa) join PAC members Elise, Leela and Madeline for a chat about heading back to school with IBD.

Episode 11 of the imPACt podcast brings together young adult PAC members and Dr. Michele Maddux, a clinical psychologist at Children’s Mercy Hospital, for a candid discussion about the many aspects of transitioning from pediatric to adult IBD care.