News

ImproveCareNow is wrapping up a week-long media campaign, delivered in partnership with the C3N│Collaborative Chronic Care Network. Our campaign aimed to engage our supporters to share their voices and stories; to help expand our circle and raise awareness about Crohn’s Disease and ulcerative colitis during the first annual Crohn’s & Colitis Awareness Week (December 1 – 7). 

ImproveCareNow is pleased and proud to introduce an excellent new self-management resource for young patients and their families who are living with Crohn’s Disease and ulcerative colitis (Inflammatory Bowel Disease or IBD). Living Well with Inflammatory Bowel Disease: A Self-Management Handbook for Patients & Families with IBD, or “the Handbook”, is a comprehensive resource for patients and families who are learning about these conditions.  

The ImproveCareNow Collaborative is a program in which pediatric gastroenterologists at 16 practice sites in the US are working together to develop, test and implement quality improvement tools to improve the care and health of over 2,000 children and adolescents with Crohn’s disease and ulcerative colitis. Since early 2008 the proportion of our Crohn’s disease patients who are in remission has progressively increased from 49% to 64%, and the remission rate of our ulcerative colitis patients is increasing as well. 

The Children's Hospital in Denver, Colorado, which made Honor Roll as one of the nation’s ten best pediatric hospitals in the U.S. News & World Report’s 2009 edition of America's Best Children’s Hospitals, joins Improve Care Now. By joining Improve Care Now, The Children's Hospital participates in the nationwide collaboration of medical care facilities dedicated to helping children and adolescents with ulcerative colitis and Crohn's Disease get better.

ImproveCareNow is pleased to announce that two additional hospitals will be joining the ImproveCareNow Collaborative Network, including the first site from outside the US Great Ormond Street Hospital for Children in London, England, with Physician Leader Mamoun Elawad, will be joining the Collaborative.

• Dr. Elawad will be attending the Learning Session in Chicago this weekend with two other members of the GOSH core QI team, Nikki Acton and Sibongile Chadokufa.

AWARD: $10,000 USD  |  DEADLINE: 6/18/11 | SOURCE: InnoCentive  | CHALLENGE ID: 9932749 

Challenge Overview

The Collaborative Chronic Care Network (C3N) is looking for approaches to using games and/or game dynamics applications to inspire adolescents with inflammatory bowel disease (both Crohn’s disease and ulcerative colitis) and other chronic illnesses to create and maintain their own health. 

To determine the potential effectiveness of programs such as ImproveCareNow, it's important to understand how care is provided in the absense of such programs. The study found that there are significant variations in care, and that gaps exist between recommended and actual care.  An abstract of the study is provided below, followed by a link to the full article on the Journal of Pediatric Gastroenterology and Nutrition web site.

Watch ImproveCareNow physician Dr. Chris Forrest present via web/NIH VideoCast for the Conference on Methodological Challenges in Comparative Effectiveness Research, December 2-3, 2010. Please find below the details for accessing the video.

Below is a summary of the Enhanced Registries grant

Building Modular Chronic Disease Registries for QI and Comparative Effectiveness Research

     A learning healthcare system comprises a community of front-line clinicians, patients, and scientists who view each clinical encounter as an opportunity to learn and to improve patient outcomes.  In its most advanced state, it combines comparative effectiveness (CE) research with quality improvement (QI) science to ensure the delivery of new knowledge at the point of care. 

 “The system of providing care for the chronically ill is broken,” says Peter Margolis, MD, PhD, co-Principal Investigator of the grant project and one of the first participants in ImproveCareNow. “Building on our success with ImproveCareNow, we aim to create a totally new system of providing care through collaboration among doctors, health professionals and patients.”