Results for Study of Crohn's Disease Care Published

To determine the potential effectiveness of programs such as ImproveCareNow, it's important to understand how care is provided in the absense of such programs. The study found that there are significant variations in care, and that gaps exist between recommended and actual care.  An abstract of the study is provided below, followed by a link to the full article on the Journal of Pediatric Gastroenterology and Nutrition web site.

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Enter the InnoCentive Game Design Challenge for a Chance to Win $10K

AWARD: $10,000 USD  |  DEADLINE: 6/18/11 | SOURCE: InnoCentive  | CHALLENGE ID: 9932749 

Challenge Overview

The Collaborative Chronic Care Network (C3N) is looking for approaches to using games and/or game dynamics applications to inspire adolescents with inflammatory bowel disease (both Crohn’s disease and ulcerative colitis) and other chronic illnesses to create and maintain their own health. 

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ImproveCareNow Goes International with Addition of New Sites

ImproveCareNow is pleased to announce that two additional hospitals will be joining the ImproveCareNow Collaborative Network, including the first site from outside the US Great Ormond Street Hospital for Children in London, England, with Physician Leader Mamoun Elawad, will be joining the Collaborative.

  • Dr. Elawad will be attending the Learning Session in Chicago this weekend with two other members of the GOSH core QI team, Nikki Acton and Sibongile Chadokufa.
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Mayo Clinic Joins ImproveCareNow

The Mayo Clinic in Rochester MN—ranked No. 1 in Digestive Disorders in the U.S. News & World Report Best Hospitals rankings—has joined the ImproveCareNow alliance of health care facilities dedicated to helping children and adolescents with ulcerative colitis and Crohn’s Disease. For more information about the Mayo Clinic, visit the Mayo Clinic website

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US News & World Report: Best Children’s Hospitals of 2011-2012

According to a recently released report by the US News & World Report1, ImproveCareNow centers are among the best children’s hospitals, ranked at the top of the Honor Roll and in Gastroenterology specialty. Rankings are based on a reputational survey sent to pediatric specialists and a data survey that is sent to a handpicked set of hospitals.

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The Children's Hospital in Denver Joins ImproveCareNow

The Children's Hospital in Denver, Colorado, which made Honor Roll as one of the nation’s ten best pediatric hospitals in the U.S. News & World Report’s 2009 edition of America's Best Children’s Hospitals, joins Improve Care Now. By joining Improve Care Now, The Children's Hospital participates in the nationwide collaboration of medical care facilities dedicated to helping children and adolescents with ulcerative colitis and Crohn's Disease get better.

 

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Kids with Crohn's Disease and Ulcerative Colitis Feel Better, Abstracts Show

ImproveCareNow makes its abstracts available on its website. These abstracts, authored by a collaboration of researchers, physicians, and quality improvement experts dedicated to helping children and adolescents with ulcerative colitis and Crohn’s disease, have been presented at national scientific meetings such as the 2009 NASPGHAN Annual Meeting and Advances in Inflammatory Bowel Diseases Conference, among others.

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ImproveCareNow Approaches 10,000 Patients

ImproveCareNow is pleased to report that a recently completed survey shows that the 29 participating sites of ImproveCareNow have approximately 270 physicians and nearly 10,000 patients. The Advanced Track teams, which began the collaborative in 2007, have about 3,000 patients and currently 2,200 (71%) of them are enrolled.  The Foundations Track Teams, began in 2008, and have about 7,000 patients and are just beginning to enroll them.  

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Enhanced Registries Grant

Below is a summary of the Enhanced Registries grant

Building Modular Chronic Disease Registries for QI and Comparative Effectiveness Research

     A learning healthcare system comprises a community of front-line clinicians, patients, and scientists who view each clinical encounter as an opportunity to learn and to improve patient outcomes.  In its most advanced state, it combines comparative effectiveness (CE) research with quality improvement (QI) science to ensure the delivery of new knowledge at the point of care. 

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Update Letter

ImproveCareNow is a quality improvement project that focuses on measuring and improving the care we provide for our patients with IBD.  Since we joined ImproveCareNow in October 2007, we have enrolled 184 patients at UNC and have recorded over 400 visits to our clinic.  These patients, including your child, are included in an online database which stores information on more than 2000 pediatric IBD patients around the country.  At each visit, we record the patient’s height, weight, medication use, and related lab values to be stored in the database.  We also take note of nutritional status, disease status, and growth. 

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