Patient Advisory Council at ImproveCareNow | Looking for New Recruits

The patient voice is one to be heard. In 2011, the Patient Advisory Council (PAC) for theImproveCareNow Network was established to provide valuable input and act as an advocate, as well as serve as a resource and co-designer for the Collaborative Chronic Care Network (C3N).

Read more

Sharing is Caring │ Crohn’s & Colitis Awareness Week

ImproveCareNow is wrapping up a week-long media campaign, delivered in partnership with the C3N│Collaborative Chronic Care Network. Our campaign aimed to engage our supporters to share their voices and stories; to help expand our circle and raise awareness about Crohn’s Disease and ulcerative colitis during the first annual Crohn’s & Colitis Awareness Week (December 1 – 7). 

Read more

A Self Management Handbook for Patients & Families with IBD

ImproveCareNow is pleased and proud to introduce an excellent new self-management resource for young patients and their families who are living with Crohn’s Disease and ulcerative colitis (Inflammatory Bowel Disease or IBD). Living Well with Inflammatory Bowel Disease: A Self-Management Handbook for Patients & Families with IBD, or “the Handbook”, is a comprehensive resource for patients and families who are learning about these conditions.  

Read more

Enhanced Registries Grant

Below is a summary of the Enhanced Registries grant

Building Modular Chronic Disease Registries for QI and Comparative Effectiveness Research

     A learning healthcare system comprises a community of front-line clinicians, patients, and scientists who view each clinical encounter as an opportunity to learn and to improve patient outcomes.  In its most advanced state, it combines comparative effectiveness (CE) research with quality improvement (QI) science to ensure the delivery of new knowledge at the point of care. 

Read more

ImproveCareNow Doctors Win Innovation Grant

 “The system of providing care for the chronically ill is broken,” says Peter Margolis, MD, PhD, co-Principal Investigator of the grant project and one of the first participants in ImproveCareNow. “Building on our success with ImproveCareNow, we aim to create a totally new system of providing care through collaboration among doctors, health professionals and patients.”

Read more

American Board of Pediatrics Writes Letter of Support

The American Board of Pediatrics (ABP) is the certifying organization for pediatric physicians.  Certification by the ABP is recognized throughout the world as a credential signifying a high level of physician competence.

Read more

Results for Study of Crohn's Disease Care Published

To determine the potential effectiveness of programs such as ImproveCareNow, it's important to understand how care is provided in the absense of such programs. The study found that there are significant variations in care, and that gaps exist between recommended and actual care.  An abstract of the study is provided below, followed by a link to the full article on the Journal of Pediatric Gastroenterology and Nutrition web site.

Read more

Kids with Crohn's Disease and Ulcerative Colitis Feel Better, Abstracts Show

ImproveCareNow makes its abstracts available on its website. These abstracts, authored by a collaboration of researchers, physicians, and quality improvement experts dedicated to helping children and adolescents with ulcerative colitis and Crohn’s disease, have been presented at national scientific meetings such as the 2009 NASPGHAN Annual Meeting and Advances in Inflammatory Bowel Diseases Conference, among others.

Read more

New system of care: A good day for kids!

This past Friday, doctors, nurses, parents and policy makers met to release the much anticipated results of a study by ImproveCareNow, the collaborative that is helping kids with Crohn's disease and ulcerative colitis get better now. Writing about the event, Thomas McCormally, senior director of Public Relations at Cincinnati Children’s Hospital Medical Center, says:

Read more

Update Letter

ImproveCareNow is a quality improvement project that focuses on measuring and improving the care we provide for our patients with IBD.  Since we joined ImproveCareNow in October 2007, we have enrolled 184 patients at UNC and have recorded over 400 visits to our clinic.  These patients, including your child, are included in an online database which stores information on more than 2000 pediatric IBD patients around the country.  At each visit, we record the patient’s height, weight, medication use, and related lab values to be stored in the database.  We also take note of nutritional status, disease status, and growth. 

Read more

Built by Veracity Media on NationBuilder